Seattle Children’s – Day 103

Well it looks like we are being discharged in two if everything goes well.

We are being discharged with TPN (IV feeds) as his primary source of nutrition with a goal in the next years transitioning to oral feeds…..

We have one more dilation procedure tomorrow.

This means that, with only short 1-2 week exceptions a couple times a year, we are in the stuck in Western Washington.

Once we are home we are looking at 2ish Dr. Appointments for the next 1 to 3 months.

We will be returning to our Homebase in Bremerton, WA couple days after discharged for a couple months. We will also still be joining our extended family for the 4th of July camping trip.


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