Well it looks like we are being discharged in two if everything goes well.
We are being discharged with TPN (IV feeds) as his primary source of nutrition with a goal in the next years transitioning to oral feeds…..
We have one more dilation procedure tomorrow.
This means that, with only short 1-2 week exceptions a couple times a year, we are in the stuck in Western Washington.
Once we are home we are looking at 2ish Dr. Appointments for the next 1 to 3 months.
We will be returning to our Homebase in Bremerton, WA couple days after discharged for a couple months. We will also still be joining our extended family for the 4th of July camping trip.