Final Parainfluenza Update
Richard has now gone two nights without needing any supplemental oxygen or any overnight respiratory support! He is also back …
Hospital Updates
Day 2 Doernbecher Children’s Hospital
Update from the hospital- we did get admitted last night (5/18) and thankfully moved to the floor around 10pm. Also …
Doernbecher Children’s Hospital
Today Well… we are all at the ER with Richard. He kept desatting on his low flow nasal cannula and …
Christmas Eve @ Mary Bridge
Sunday, December, 24th 2023 | Inpatient Day 04 Richard is improving. He keeps getting a little more energy and more …
Another day in the PICU
Saturday, December, 23rd 2023 | Inpatient Day 03 Today was a easy day with slow but marked improvements overall. Dr. …
Moved to the PICU
Thursday, December, 21st 2023 | Inpatient Day 02 This morning Richard met Amanda his day shift nurse. She is very …
Boston Children’s EDG with Dilation
Thursday, June, 15th 2023 This morning Papa and Richard left at 4:30 am to be at Boston Children’s at 6am …
Boston Children’s Day 2023.027
Saturday, May, 27th 2023 – Discharge Day! We got word this morning from the nurse practicioners that we were okay …
Boston Children’s Day 2023.026
Friday, May, 26th 2023 Today was a pretty easy day. We have our discharge criteria: (1) room air during the …
Boston Children’s Day 2023.025
Thursday, May, 25th 2023 Richard is slowly but surely improving decreasing his oxygen dependency and building up on his feed …