Boston Children’s Hospital 2023

Boston Children’s EDG with Dilation

June 21, 2023 by Kyle

Thursday, June, 15th 2023 This morning Papa and Richard left at 4:30 am to be at Boston Children’s at 6am …

May 29, 2023 by Kyle

Saturday, May, 27th 2023 – Discharge Day! We got word this morning from the nurse practicioners that we were okay …

May 28, 2023May 27, 2023 by Katie

Friday, May, 26th 2023 Today was a pretty easy day. We have our discharge criteria: (1) room air during the …

May 27, 2023 by Kyle

Thursday, May, 25th 2023 Richard is slowly but surely improving decreasing his oxygen dependency and building up on his feed …

May 25, 2023 by Kyle

Wednesday, May, 24th 2023 POOP! A disappointment, busy day and lots of good news… Overnight Papa got a overall good …

May 25, 2023May 24, 2023 by Kyle

Tuesday, May, 23rd 2023 Today was a busy day. We started the day at our normal 5am when papa got …

May 23, 2023May 23, 2023 by Kyle

Sunday, May 21st 2023 Today was another day of about the same. Richard is medically sedated and paralyzed. It is …

May 20, 2023 by Kyle

Saturday, May, 20th 2023 This will be a short post with much more details to come in the next couple …

July 29, 2023May 20, 2023 by Kyle

Wednesday, May, 17th 2023 Today started off like any other. Overnight he had a few more then usual Emesis (throwing-up/reflux) …

May 18, 2023May 18, 2023 by Kyle

Hi all- Richard was originally scheduled for surgery Friday, but there was a cancelation Thursday so they are pushing up …